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XPSA was founded in 2010 by Maryna de Beer who has XP. Maryna had a vision to help others with XP, and through hard work and dedication to protection she is now the leader in South Africa to provide XP families with the support and information needed to cope daily with XP.
Xeroderma Pigmentosum communities has been founded in England, Germany and the USA and now in South Africa.
Our aim is to make more people aware of the dangers of the sun in South Africa and what symptoms to look for, as well as to help and build a support group for those with the disease.
