We are the Twilight Children
The sun is our enemy
We prefer to watch the moon rise on the beach
The sun can be deadly - Protect yourself
At night we come out and play
The XP Society South Africa is a charitable organization. Since its conception the society has spread its wings internationally to England and Germany and now also to South Africa. Registration as a non profit organization was on 06 January 2010.
Purpose: - Creating an awareness of the dangers of the harsh South African sun.
Building support groups for people living with XP.
Support activities: - Raising funds for awareness campaigns and doing research.
Night camps for social interaction between sufferers and their families.
XP Society SA is a registered charity organization run by volunteers. We bring hope and comfort to sufferers of xeroderma pigmentosum. Like cancer it does not discriminate and anyone can be a victim.
All our events has to be at night. If you have a venue where we can entertain these families for a weekend, please get in touch with us.
We call on manufacturers of protective clothing, medical product suppliers and transport companies to join us in making South Africa aware of the dangers of prolonged exposure to sunlight.